Yesterday I received my first Cytogam IV transfusion. This drug contains cytomegalovirus antibodies. The doctors are hoping that pumping my system with extra antibodies will reduce the likelihood or severity of transfer between myself and the baby. This drug is not 100% guaranteed to work. It is in fact still being tested in some research trials in Virginia. Although I would have qualified for the research trial I decided not to join because of the 50/50 chance I’d receive the placebo. If I’m going to do this, I’m getting the real thing! lol If however, you have the virus and are interested in obtaining information about the trial or drug you can contact Dr. Stuart Adler: http://www.cmvregistry.org/stuartadler.html He works out of Richmond, VA.
The entire process was not bad. My pharmacy had to receive a referral from the high risk doctor, place a special order, and then send the drug. The drug and supplies to administer the IV were sent to my home. A home health care nurse came by and gave me the transfusion. You can also go to the hospital to receive the infusion, but my insurance allows for a home nurse and I thought that would be more comfortable and convenient.
The entire transfusion took an hour and a half. The medicine was given slowly since it was the first time I received it. The nurse checked my blood pressure and temperature every fifteen minutes. Once the transfusion was complete, she packed up and I was able to continue on with my day. I did not experience any side effects from the medicine. My arm is a bit sore where the IV needle was placed, but that is to be expected.
Overall I was pleased with the experience. I am supposed to have the same transfusion once a month for the next few months.
That said, Jonathon and I are still walking in faith and wisdom. We just keep praying for God’s guidance regarding this situation. When it’s a God plan, He makes your path straight. There is no confusion. So, we forge on. 🙂 I truly thank everyone for their support, kind words, and prayer. I am so thankful that God has given me the opportunity to share this journey for His glory.